Jonathan Pierre was born with a life-threatening heart condition and given just a four in ten chance of survival. He spent months in intensive care, underwent major surgeries, and faced ongoing complications that shaped his childhood.
“Being a kid with a heart condition, with many insecurities around it and then embracing it as I got older and seeing it as something to be proud of.”
After years of feeling self-conscious about his scars, he has learned to embrace them as symbols of strength and survival. This Heart Month, Jonathan and his mum, Sue, are reflecting on his journey, sharing their story to inspire others facing similar challenges.
Sue remembers: “When everything happened it was a whirlwind for us both. When you see your son there, and he’s got tubes coming out of every part of his body, in his throat and everything else, it’s a horrible thing. I felt scared.”
Jonathan was diagnosed with multiple ventricular septal defects (VSD), a condition that causes holes in the wall separating the lower chambers of his heart, putting immense strain on his heart and lungs.
Jonathan shares: “I’m living proof that you can still have a full life. Those that are having the same surgeries today, don’t need to feel self-conscious. Just be yourself, go out there and get what you want.”
Jonathan and Sue’s journey is a powerful reminder of resilience and hope.
This Heart Month, explore our toolkits designed to support parents and caregivers of children with congenital heart disease — helping you navigate challenges, nurture young hearts, and empower their future.
